autism is a journey: Complexities

Monday, April 21, 2008

Complexities

Being a parent is complex; I'm certain I would have struggles without autism. Autism just colors and fragments my world so dramatically. I often contemplate just how different I would be as an individual without autism.

I'm certain I wouldn't be as outspoken and passionate as I am. With an urgency, I understand that I've just got one shot at this parenting thing and I've got to get it right....

1 comment:

tylerbritney said...: (((HEATHER))) I feel like that alot too. You are doing a great job with the boys. Unfortunately with autism, its so unpredictable that us parents just have to go with what feels right and move on from there.; April 24, 2008 at 8:17 AM

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from "Metaphor-the puzzle piece symbol"

Ever had one of those "ah-ha" moments? I'm driving down the road today, pondering Jackson's recent successes--boyscout camp and football camp. It occurred to me that each experience gave me back a piece of Jackson. [I'm not doing a very good job explaining this...] When we learned about Jackson's diagnosis, so many dreams were snuffed out. We no longer thought about our son becoming an athlete, a scholar, or even a friend. We thought in much smaller terms:"how many words does he have?""did he learn a new sign""is he reaching out to us?""that's playing pretend, isn't it?"Our perspective as parents permanently changed. It's like we had this complete picture of our child and autism fractured it--into a 1,000 piece jigsaw puzzle.Each day little by little, we get pieces of the puzzle back. It'll never be complete, never the same as we expected, but there will be parts that will come together.Like when he participated in the school music program, enjoyed boyscout camp, rode the roller coaster and attended football camp. Bit by bit, we get pieces of what we expected back.Of course, the flip side of this is all the joys we gain from Jackson that we never expected in spite of the autism, but that's another post my friends....