Advances in Autism?

The other day as I was channel surfing in the car, I caught the end of some financial advice Dave Ramsey was giving to a family regarding a special needs trust for their child with autism. The parent was considering rolling the college fund money over into a trust. Ramsey basically said to wait to set up the trust, dump money in a more liquid account because anything could happen in the next ten years with the advances they are making in autism.

Well that one gave me pause. ???

Just last week a family member contacted me to let me know her three year old son was recently diagnosed with autism. After I caught my breath, and cried with her, I referred her to some good resources and tried to give her hope. But I also got angry and cringed: shouldn't there be more answers now? Shouldn't we have a better therapy protocol? Shouldn't services be more readily available? Shouldn't families have far more hope?

It's been nearly a decade we've been pursuing what I've now come to label "quality of life" for Jackson. Most times, I feel like we're doing a pretty good job of it. Other times I feel like there is so much more we could be doing. A simple google search yields a wealth of approaches:

restrictive diets
holistic medicines
chelation
hyperbaric chamber therapy
vision therapy
stem cell transfusions
therapy after therapy after therapy
The one thing they all have in common is cost. Don't get me wrong, I'd sell everything I've got, short of my soul to extinguish this demon. Unfortunately, there is no magic bullet, no wonder cure. Which leaves me feeling empty, though not hopeless.

Generally, I feel like we're making good choices for him; helping him be the best he can be. I do have days when the google searches haunt me and I wonder if what I'm doing is right or enough. I have other days when I am angry and frustrated; still others when I am full of hope and touched by my son's gentle spirit.

Another Milestone

Last week Jackson went to a friends birthday party. Shyenne turned 13 and had more than a dozen kids over to celebrate. It happened to be the same night of our annual family party, so I made arrangements for Jackson to go with the help of a high school friend.
At first, he was hesitant and unsure. He didn't want to go at all:
"No party. I will just stay home."
Well, I'm all about pushing his limits and having him try new things, so I pushed him. I reassured him over and over. We talked about the sequence: first mom will take you and Micheal, next you will swim at Shyenne's and sing happy birthday, then mom will pick you up. Kid you not, we went through this litany over a dozen times.
When we got in the car, we repeated this litany with Micheal still another half a dozen times until we got to the party. Once we were there, he was still unsure and needed more prompting, eventually he settled down and I drove off...with tears in my eyes. I watched in the rear view mirror as he pushed another boy into the pond off the pier.
I waited anxiously for an update: would he want to come home early? Would he be overwhelmed by everything? Would the dog freak him out [I hadn't prepared him for the dog]? Would he have a meltdown? I sent a text for an update and learned he was in his element and enjoying himself.
In the end he had a great time. He pushed more kids off the pier, ate a sufficient amount of junk food and even got used to the dog. The party gave Jackson another opportunity to grow, another chance to overcome obstacles and for this I am ever so grateful.