autism is a journey: Holiday Hustle

Thursday, December 25, 2008

Holiday Hustle

Well, we have 5 down and 2 to go!
Jackson is actually doing remarkably well.
This morning he was thrilled to finally get Horton Hears a Who from Santa. Of course, he was less into the DVD and more about the plush Horton beanie baby that came with it.
All in all the day was a big success and he handled the to and fro quite well...probably better than I did (lol).
This evening he's enjoying the drum set we got for him and his brother and coloring the Super Why pages he got in one of his gifts. All is right with the world, for now...

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from "Metaphor-the puzzle piece symbol"

Ever had one of those "ah-ha" moments? I'm driving down the road today, pondering Jackson's recent successes--boyscout camp and football camp. It occurred to me that each experience gave me back a piece of Jackson. [I'm not doing a very good job explaining this...] When we learned about Jackson's diagnosis, so many dreams were snuffed out. We no longer thought about our son becoming an athlete, a scholar, or even a friend. We thought in much smaller terms:"how many words does he have?""did he learn a new sign""is he reaching out to us?""that's playing pretend, isn't it?"Our perspective as parents permanently changed. It's like we had this complete picture of our child and autism fractured it--into a 1,000 piece jigsaw puzzle.Each day little by little, we get pieces of the puzzle back. It'll never be complete, never the same as we expected, but there will be parts that will come together.Like when he participated in the school music program, enjoyed boyscout camp, rode the roller coaster and attended football camp. Bit by bit, we get pieces of what we expected back.Of course, the flip side of this is all the joys we gain from Jackson that we never expected in spite of the autism, but that's another post my friends....