autism is a journey: Here we Are

Monday, October 8, 2007

Here we Are

The rash is basically gone, thanks to zyrtec and steriod cream.

He'll be 10 Friday. I can hardly believe it!

We went to Lazer X for his birthday party. It was such a wonderful time. Who would have guessed that I'd survive with 6 boys and Jackson? The boys were all sooo good. I kept waiting for it to get crazy. Granted, my tolerance is probably greater than most; especially for these boys who are so good to Jackson. They agreed to eating cake and ice cream almost as soon as we arrived b/c Jax was starving. Then when we sang to Jackson, he insisted we sing to Arthur (not him). For some strange reason, he doesn't like "happy birthday dear Jackson"...anyway, all seemed to have a good time, Jackson included. Which meant I had a good time.

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from "Metaphor-the puzzle piece symbol"

Ever had one of those "ah-ha" moments? I'm driving down the road today, pondering Jackson's recent successes--boyscout camp and football camp. It occurred to me that each experience gave me back a piece of Jackson. [I'm not doing a very good job explaining this...] When we learned about Jackson's diagnosis, so many dreams were snuffed out. We no longer thought about our son becoming an athlete, a scholar, or even a friend. We thought in much smaller terms:"how many words does he have?""did he learn a new sign""is he reaching out to us?""that's playing pretend, isn't it?"Our perspective as parents permanently changed. It's like we had this complete picture of our child and autism fractured it--into a 1,000 piece jigsaw puzzle.Each day little by little, we get pieces of the puzzle back. It'll never be complete, never the same as we expected, but there will be parts that will come together.Like when he participated in the school music program, enjoyed boyscout camp, rode the roller coaster and attended football camp. Bit by bit, we get pieces of what we expected back.Of course, the flip side of this is all the joys we gain from Jackson that we never expected in spite of the autism, but that's another post my friends....